This was the only spot I could find a place to leave a comment. Your story has helped me out tremendously! My daughter has not been diagnosed with CP yet but I have a feeling that is where we are headed. It all started when she wasn’t smiling when she was supposed to be. Her doctor kept an eye on here and more and more delays were noticed. We have done a CT and MRI. The only answer I’ve gotten is that she has a very thin Corpus Collosum (which can have results of some form of mental disability). Her neurologist didn’t say antything about it except, there are people that go their whole lives without one and are fine and that he was leaning more towards CP.
I had a normal pregnancy and she had no problems at birth. After finding and reading your website I have learned that she has a lot of the symptoms to a degree. She didn’t start sitting on her own until she was 10 months, she still does not crawl however, she will get up on her knees and hands and rock. She just turned and year old and she does not talk at all. Just moans here and there. She has low muscle tone and one of her eyes exerts out.
We are getting things going on the early intervention program and all the therpy will be starting soon. Occupational, Physical and Speech.
With that said I just wanted to thank you for posting your story as it has informed me much more than the doctors have. I can take this information to get more answers.
I admire you and your son and your story has truly inspired me!
I hope to talk to you in the future!
Hello – I am writing to ask for permission to use the photo from your website of the adorable little boy using the reversible walker. I am writing a course on different disabilities to present to DME equipment suppliers and clinicians and would like to include this photo in the section on cerebral palsy. If needed, I could block out or smudge his eyes or other facial features. Thank you,
Elizabeth
Thank you so much. I’d like to tell you like in my sons case nothing showed up in the ct or MRI. But it was still cp. You are a good mom. Keep doing what you are doing.
I understand most of the time nothing will show up in a ct or MRI. I went to several doctors within the first nine months telling them something was wrong and they blamed it on being premature. It was a school pt visiting my home to check up on him before the age of one. I will never forget when I asked her what she thought and she said she thought he had cerebral palsy. Her no nonsense attitude and comment, “What? He is still the same Michael” helped me so much to deal with the pain of hearing those words and wondering what my son’s future will be like.
This was the only spot I could find a place to leave a comment. Your story has helped me out tremendously! My daughter has not been diagnosed with CP yet but I have a feeling that is where we are headed. It all started when she wasn’t smiling when she was supposed to be. Her doctor kept an eye on here and more and more delays were noticed. We have done a CT and MRI. The only answer I’ve gotten is that she has a very thin Corpus Collosum (which can have results of some form of mental disability). Her neurologist didn’t say antything about it except, there are people that go their whole lives without one and are fine and that he was leaning more towards CP.
I had a normal pregnancy and she had no problems at birth. After finding and reading your website I have learned that she has a lot of the symptoms to a degree. She didn’t start sitting on her own until she was 10 months, she still does not crawl however, she will get up on her knees and hands and rock. She just turned and year old and she does not talk at all. Just moans here and there. She has low muscle tone and one of her eyes exerts out.
We are getting things going on the early intervention program and all the therpy will be starting soon. Occupational, Physical and Speech.
With that said I just wanted to thank you for posting your story as it has informed me much more than the doctors have. I can take this information to get more answers.
I admire you and your son and your story has truly inspired me!
I hope to talk to you in the future!
From Phoenix, Az.,
Jenny
Hello – I am writing to ask for permission to use the photo from your website of the adorable little boy using the reversible walker. I am writing a course on different disabilities to present to DME equipment suppliers and clinicians and would like to include this photo in the section on cerebral palsy. If needed, I could block out or smudge his eyes or other facial features. Thank you,
Elizabeth
Yes please do. It’s one of my favorites!
Thank you so much. I’d like to tell you like in my sons case nothing showed up in the ct or MRI. But it was still cp. You are a good mom. Keep doing what you are doing.
I understand most of the time nothing will show up in a ct or MRI. I went to several doctors within the first nine months telling them something was wrong and they blamed it on being premature. It was a school pt visiting my home to check up on him before the age of one. I will never forget when I asked her what she thought and she said she thought he had cerebral palsy. Her no nonsense attitude and comment, “What? He is still the same Michael” helped me so much to deal with the pain of hearing those words and wondering what my son’s future will be like.
Top-notch share indeed. I have been seeking for this update. Thanks a lot.