Cerebral Palsy Child
A Mom's Perspective
March 10, 2008 By ann121 12 Comments
September 3, 2008 at 8:32 pm
This was the only spot I could find a place to leave a comment. Your story has helped me out tremendously! My daughter has not been diagnosed with CP yet but I have a feeling that is where we are headed. It all started when she wasn’t smiling when she was supposed to be. Her doctor kept an eye on here and more and more delays were noticed. We have done a CT and MRI. The only answer I’ve gotten is that she has a very thin Corpus Collosum (which can have results of some form of mental disability). Her neurologist didn’t say antything about it except, there are people that go their whole lives without one and are fine and that he was leaning more towards CP.
I had a normal pregnancy and she had no problems at birth. After finding and reading your website I have learned that she has a lot of the symptoms to a degree. She didn’t start sitting on her own until she was 10 months, she still does not crawl however, she will get up on her knees and hands and rock. She just turned and year old and she does not talk at all. Just moans here and there. She has low muscle tone and one of her eyes exerts out.
We are getting things going on the early intervention program and all the therpy will be starting soon. Occupational, Physical and Speech.
With that said I just wanted to thank you for posting your story as it has informed me much more than the doctors have. I can take this information to get more answers.
I admire you and your son and your story has truly inspired me!
I hope to talk to you in the future!
From Phoenix, Az.,
Elizabeth Cole says
March 22, 2011 at 12:32 pm
Hello – I am writing to ask for permission to use the photo from your website of the adorable little boy using the reversible walker. I am writing a course on different disabilities to present to DME equipment suppliers and clinicians and would like to include this photo in the section on cerebral palsy. If needed, I could block out or smudge his eyes or other facial features. Thank you,
April 5, 2011 at 4:21 am
Yes please do. It’s one of my favorites!
May 1, 2011 at 12:09 am
Thank you so much. I’d like to tell you like in my sons case nothing showed up in the ct or MRI. But it was still cp. You are a good mom. Keep doing what you are doing.
August 7, 2011 at 9:15 am
I understand most of the time nothing will show up in a ct or MRI. I went to several doctors within the first nine months telling them something was wrong and they blamed it on being premature. It was a school pt visiting my home to check up on him before the age of one. I will never forget when I asked her what she thought and she said she thought he had cerebral palsy. Her no nonsense attitude and comment, “What? He is still the same Michael” helped me so much to deal with the pain of hearing those words and wondering what my son’s future will be like.
Salman Ahmad Khan says
January 15, 2014 at 1:05 am
Best One i need it
Respected Sir /Madam,
I have four daughters. First one is 14 years old, second is 12, third is 9 years & last one is 2 years old. My first two daughters are quite right and school going girls, third one is also school going girl, but unfortunately she is Mild CP and walking with crocodile walker. She can’t walk without walker. She can’t stand or walk without any source. Many of doctor’s are saying she is not CP. But I only know this she is not walking without help. I don’t understand about her disease. Current brain MRI report is quite clear.
Another problem is that I am seeing some problems in forth one daughter too. She is 2 years old now. Till one year (12 months) she was absolutely right. She starts everything like sitting crawling etc. in time with round shape crawling. But her left side was week and she used it very slow in moving.
I examined her with some Doctors like general Physician, Orthopaedics, as well as Neuro Physicians. At last we found in local brain MRI report Suggestive Leukodystrophy. Before this test she was losing like crawling, setting & standing. Now after three months of this report I am seeing that she is recovering. She starts again frequent moving her hands again and also trying to sit without tack, and I have come to know that in leukodystophy recovery is not possible.
Sir, I don’t know what should I do for the both Childs.
So, please give me some advice. If there are some treatments for my children so please inform me, I will become there without waisting time.
Hope for early and positive response.
Salman Ahmad Khan,
Range Rover BeCM says
December 10, 2014 at 9:43 pm
Does Michael or did he get leg cramps? My son complains of them terribly.
December 13, 2014 at 8:43 pm
He got terrible leg cramps between the ages of 6 – until maybe 11 or 12? A couple of times I ran him to the emergency room. I thought something was seriously wrong. They called it growing pains, but he found it horribly painful.
January 3, 2015 at 7:21 pm
How difficult was the recovery with the rhyzotomy?
Doudoune Canada Goose pas cher says
January 8, 2015 at 3:00 pm
How does your son do in cold weather? My son really struggles and I question whether we should move somewhere warmer.
April 10, 2015 at 3:27 am
I was able to find good advice from your content.
April 19, 2015 at 6:35 pm
I have a special needs daughter. She has Chronic lung disease, apnea, bradycardia, GERD, reflex, particularly blind, gtube, cerebral palsy, epilepsy & autism. She also had a very thin corpus collosum. She didn’t crawl until she was two, she doesn’t walk, she just learned how to stand and cruise. She says only about 5 words. Today after I picked her up from visitation with her dad I noticed her oxygen tube was pinched and twisted. After I picked her up she started moaning constantly. She is two. She wont stop moaning. Does anyone experience this?
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