Cerebral Palsy Child
A Mom's Perspective
March 10, 2008 By ann121 6 Comments
diane walsh says
April 28, 2010 at 9:25 am
do you know where I can get a video of a child with cerebral palsy getting dressed? I have a student that could benefit from watching it? Thank you
April 5, 2011 at 4:28 am
Shoes were the worse thing to teach Michael. If you look at the photo with him crying and a Christmas tree in the background it was “tough love” that if he put his shoes on he could open a present. It took him over an hour. It was hard and frustrating for him and me as well. Michael is 22 today and he puts his leg braces and shoes on by himself in about 5 minutes. I encourage patience to all parents. It’s easy to give in, but if your physical therapist says your child can do this with the right coaching you are doing them no favors by doing it yourself. Make them get ready hours early. I would put Michael’s clothes in the middle of the livingroom floor 2 hours before we needed to go. He’d fuss the whole time. Today Michael thanks me over and over again for the being the mom I am. He’s written several papers. Don’t get me wrong, its hard, frustrating, etc. but later your child will appreciate what you’ve done for them.
April 9, 2011 at 4:34 pm
Parents of cp children, never let them see you feeling sorry for them. I’ve had many moments when situations came up and I went in my bedrrom and cried. I never let my son see it. Ge still feels no different than anyone else. He’s done every sport out there, we just modify it. For awhile he wanted to be a firefighter. I never said he couldn’t. But he could be a 911 dispatcher. He plans to go to Japan next year to teach English!
April 30, 2011 at 11:50 pm
I don’t have any videos. It was our ot that taught us best techniques, every child with cp is so different. I’d ask the advice of your ot.
polo lauren says
December 8, 2014 at 7:50 pm
How did you decide where to take your child for treatment? I find it very difficult and confusing.
December 13, 2014 at 8:46 pm
I did a lot of research. I spoke to other parents. I spoke to pt’s, ot’s, and local medical doctors. I then “interviewed” 2 doctors. I won’t to both facilities and received two different plans of action. That made it worse. In the end, it was my decision to make. Everything we did was to improve quality of life. Because it really was “optional”, I made the final decision on which doctor to choose. Once I made that choice, I put all of my faith in our doctor to make the choices. Believe it or not, that was actually easier.
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