Comments for Cerebral Palsy Child

Comment on We want to hear by nuzhat

nuzhat — Sat, 26 Sep 2009 21:05:04 +0000

Hi-I am a teacher but not working for last five years due to my cp child Hassan.people around me often comment that i have been punished by God for some reason.But i believe that God always selects His chosen people for harder tasks.i believe and strongly believe that one day my son will walk ,run and play normally with his elder brother.I am a determined mother and i will never give up.Being a muslim i strongly believe that my Lord will never let me down.

Comment on We want to hear by Lisa

Lisa — Sat, 08 Aug 2009 00:26:47 +0000

Perhaps is can help take away some of the sting if you realize that the men who accused you of “riding” in the wheelchair and parking unnecessarily in the handicapped parking were simply concerned that those things were being used frivolously. We all know that people often do park in handicapped spots for their own convenience, and they do use the wheelchairs just for fun. We should all speak up when we see it. But if we all speak up, then sometimes – as in your case – the one speaking up will be in error.

Comment on What Have You Tried by Sam Zhou

Sam Zhou — Fri, 26 Jun 2009 18:04:55 +0000

Thanks for the information. This is very helpful website. I am researching whether my 15 year old daughter should have SDR. Do you think the SDR Michael had benefit him in long term? I appreciate it if you can email me back. Thanks!

Comment on What Have You Tried by Kristina

Kristina — Wed, 06 May 2009 13:12:18 +0000

Hello there, my name is Kristina and I live in Perth Western Australia, I have a nearly 2 yo son called Fletcher who has spastquad CP… long story of how he got it but wow your website showed me great strength and courage that I too hope to gain more and more throughout FLetcher’s life…. Thank you for sharing all your knowledge with us… I ‘want’ to do as much as I can but at the moment I feel as though we are just plodding along and not doing EVERYTHING we can.. i want to, im just afraid time is slipping away without making the most of every opportunity….
But thank you
LOve kristina

Comment on We want to hear by Sandy

Sandy — Wed, 28 May 2008 00:27:17 +0000

Hi- I am so thankful that I stumbled accross this website. You are an amazing mom and one that a mom struggling to deal with her beautiful daughter’s CP needed to find. I too am in Michigan and my family is just beginning this CP journey of life. My daughter is 22 months old. I’ve have SO many people persecute me because I am a teacher and am still working, and not home 24 hours/ 7 days a week. What they fail to understand is that my benefits and pay help my family of three beautiful daughters and gets private therapy for Natalie at home.

Comment on What Have You Tried by Jennifer

Jennifer — Mon, 05 May 2008 17:51:03 +0000

We tried Hyperbaric Oxygen Therapy with our 2 year old daughter who has severe CP. She also did 2 hours of intense OT/PT everyday along with the HBOT, and she showed great improvement. Her head control and balance improved as well as her swallowing and speech. HBOT works similar to stem cells.

Comment on We want to hear by Nathan

Nathan — Sun, 27 Apr 2008 20:26:27 +0000

Hi – one of the most difficult things that someone said to me, was when a lady say that my daughter Sarah could not walk, she said: “Well, at least you won’t need to chase her away from the boys.” It was a haunting comment, so stupid yet painful in some ways. You have a great website… Very informative. It is featured on cpmom.com – but am thinking this is so useful I will add it to cpdad.com also. Keep it up.

Comment on We want to hear by Nichole

Nichole — Sat, 26 Apr 2008 18:38:45 +0000

I just discovered this site when searching for “SDR Michigan”. We too are in Michigan and so I was especially drawn to reading every single item on this site. I cried as I read about Michael walking to get his diploma. I also realize I need to allow my son to be more independant, work harding with his walker, and especially work harder on the other things he needs to learn to do for himself if he is ever to become independent (toileting, dressing, feeding).

I would love to get in contact with you. Michael sounds a lot like Thomas. And I can only hope Thomas’ mom is as amazing as Michael’s mom is!

Comment on We want to hear by Margie Gillean

Margie Gillean — Thu, 24 Apr 2008 03:13:39 +0000

This is an amazing web site. We have a CD that we use in member services, called the 10 commandments of communicating with people of disabilities. It’s difficult to know what to say, but mostly like our Mom’s always taught us, unless it’s something nice don’t say it all. I wish you continued success in your pathways. Thanks for educating the rest of us along your way. Kindest regards, Margie

Comment on What Have You Tried by admin

admin — Sun, 13 Apr 2008 16:58:18 +0000

The minimum amount of time I’ve heard is one year. I do know someone who did have the surgery, but did not follow up with therapy. There wasn’t any benefit to the child and the family was very disappointed. Our doctor was very upfront and would not even perform the surgery unless we agreed to the therapy. It wasn’t a fun time for; but when all was said and done it was well worth it. Michael was able to use forearm crutches functionally as well as move so much easier.

Others have experienced even bigger results, but each child is different.