Comments for Cerebral Palsy http://www.thecpchild.com A Mom's Perspective Wed, 09 Jul 2008 04:35:06 +0000 http://wordpress.org/?v=2.3.3 Comment on We want to hear by Sandy http://www.thecpchild.com/we-want-to-hear#comment-20 Sandy Wed, 28 May 2008 00:27:17 +0000 http://www.thecpchild.com/we-want-to-hear#comment-20 Hi- I am so thankful that I stumbled accross this website. You are an amazing mom and one that a mom struggling to deal with her beautiful daughter's CP needed to find. I too am in Michigan and my family is just beginning this CP journey of life. My daughter is 22 months old. I've have SO many people persecute me because I am a teacher and am still working, and not home 24 hours/ 7 days a week. What they fail to understand is that my benefits and pay help my family of three beautiful daughters and gets private therapy for Natalie at home. Hi- I am so thankful that I stumbled accross this website. You are an amazing mom and one that a mom struggling to deal with her beautiful daughter’s CP needed to find. I too am in Michigan and my family is just beginning this CP journey of life. My daughter is 22 months old. I’ve have SO many people persecute me because I am a teacher and am still working, and not home 24 hours/ 7 days a week. What they fail to understand is that my benefits and pay help my family of three beautiful daughters and gets private therapy for Natalie at home.

]]> Comment on What Have You Tried by Jennifer http://www.thecpchild.com/what-have-you-tried#comment-14 Jennifer Mon, 05 May 2008 17:51:03 +0000 http://www.thecpchild.com/what-have-you-tried#comment-14 We tried Hyperbaric Oxygen Therapy with our 2 year old daughter who has severe CP. She also did 2 hours of intense OT/PT everyday along with the HBOT, and she showed great improvement. Her head control and balance improved as well as her swallowing and speech. HBOT works similar to stem cells. We tried Hyperbaric Oxygen Therapy with our 2 year old daughter who has severe CP. She also did 2 hours of intense OT/PT everyday along with the HBOT, and she showed great improvement. Her head control and balance improved as well as her swallowing and speech. HBOT works similar to stem cells.

]]> Comment on We want to hear by Nathan http://www.thecpchild.com/we-want-to-hear#comment-12 Nathan Sun, 27 Apr 2008 20:26:27 +0000 http://www.thecpchild.com/we-want-to-hear#comment-12 Hi - one of the most difficult things that someone said to me, was when a lady say that my daughter Sarah could not walk, she said: "Well, at least you won't need to chase her away from the boys." It was a haunting comment, so stupid yet painful in some ways. You have a great website... Very informative. It is featured on cpmom.com - but am thinking this is so useful I will add it to cpdad.com also. Keep it up. Hi - one of the most difficult things that someone said to me, was when a lady say that my daughter Sarah could not walk, she said: “Well, at least you won’t need to chase her away from the boys.” It was a haunting comment, so stupid yet painful in some ways. You have a great website… Very informative. It is featured on cpmom.com - but am thinking this is so useful I will add it to cpdad.com also. Keep it up.

]]> Comment on We want to hear by Nichole http://www.thecpchild.com/we-want-to-hear#comment-11 Nichole Sat, 26 Apr 2008 18:38:45 +0000 http://www.thecpchild.com/we-want-to-hear#comment-11 I just discovered this site when searching for "SDR Michigan". We too are in Michigan and so I was especially drawn to reading every single item on this site. I cried as I read about Michael walking to get his diploma. I also realize I need to allow my son to be more independant, work harding with his walker, and especially work harder on the other things he needs to learn to do for himself if he is ever to become independent (toileting, dressing, feeding). I would love to get in contact with you. Michael sounds a lot like Thomas. And I can only hope Thomas' mom is as amazing as Michael's mom is! I just discovered this site when searching for “SDR Michigan”. We too are in Michigan and so I was especially drawn to reading every single item on this site. I cried as I read about Michael walking to get his diploma. I also realize I need to allow my son to be more independant, work harding with his walker, and especially work harder on the other things he needs to learn to do for himself if he is ever to become independent (toileting, dressing, feeding).

I would love to get in contact with you. Michael sounds a lot like Thomas. And I can only hope Thomas’ mom is as amazing as Michael’s mom is!

]]> Comment on We want to hear by Margie Gillean http://www.thecpchild.com/we-want-to-hear#comment-10 Margie Gillean Thu, 24 Apr 2008 03:13:39 +0000 http://www.thecpchild.com/we-want-to-hear#comment-10 This is an amazing web site. We have a CD that we use in member services, called the 10 commandments of communicating with people of disabilities. It's difficult to know what to say, but mostly like our Mom's always taught us, unless it's something nice don't say it all. I wish you continued success in your pathways. Thanks for educating the rest of us along your way. Kindest regards, Margie This is an amazing web site. We have a CD that we use in member services, called the 10 commandments of communicating with people of disabilities. It’s difficult to know what to say, but mostly like our Mom’s always taught us, unless it’s something nice don’t say it all. I wish you continued success in your pathways. Thanks for educating the rest of us along your way. Kindest regards, Margie

]]> Comment on What Have You Tried by admin http://www.thecpchild.com/what-have-you-tried#comment-9 admin Sun, 13 Apr 2008 16:58:18 +0000 http://www.thecpchild.com/what-have-you-tried#comment-9 The minimum amount of time I've heard is one year. I do know someone who did have the surgery, but did not follow up with therapy. There wasn't any benefit to the child and the family was very disappointed. Our doctor was very upfront and would not even perform the surgery unless we agreed to the therapy. It wasn't a fun time for; but when all was said and done it was well worth it. Michael was able to use forearm crutches functionally as well as move so much easier. Others have experienced even bigger results, but each child is different. The minimum amount of time I’ve heard is one year. I do know someone who did have the surgery, but did not follow up with therapy. There wasn’t any benefit to the child and the family was very disappointed. Our doctor was very upfront and would not even perform the surgery unless we agreed to the therapy. It wasn’t a fun time for; but when all was said and done it was well worth it. Michael was able to use forearm crutches functionally as well as move so much easier.

Others have experienced even bigger results, but each child is different.

]]> Comment on What Have You Tried by Karen http://www.thecpchild.com/what-have-you-tried#comment-8 Karen Sun, 13 Apr 2008 16:51:25 +0000 http://www.thecpchild.com/what-have-you-tried#comment-8 Is the time commitment for a rhyzotomy really that long with therapy? Can it be shorter? Is the time commitment for a rhyzotomy really that long with therapy? Can it be shorter?

]]> Comment on What Have You Tried by admin http://www.thecpchild.com/what-have-you-tried#comment-7 admin Sun, 30 Mar 2008 23:29:31 +0000 http://www.thecpchild.com/what-have-you-tried#comment-7 I do. The adeli suit was really popular in the 1990's. I looked into it for Michael. The program is in Poland. They developed a special suit with elastic cords that is suppose to tell the body how to move. Kids are usually in the program for 4 weeks and receive 220 minutes of therapy a day. Study's have shown though that children receiving the same amount of therapy each day without the suit showed the same type of progress and it is really the therapy that caused the improvement, not the suit. I do. The adeli suit was really popular in the 1990’s. I looked into it for Michael. The program is in Poland. They developed a special suit with elastic cords that is suppose to tell the body how to move. Kids are usually in the program for 4 weeks and receive 220 minutes of therapy a day.

Study’s have shown though that children receiving the same amount of therapy each day without the suit showed the same type of progress and it is really the therapy that caused the improvement, not the suit.

]]> Comment on What Have You Tried by Cindie http://www.thecpchild.com/what-have-you-tried#comment-6 Cindie Thu, 27 Mar 2008 17:07:26 +0000 http://www.thecpchild.com/what-have-you-tried#comment-6 Do you remember the adelie suit? I haven't read or heard anything about this treatment for quite some time. Do you remember the adelie suit? I haven’t read or heard anything about this treatment for quite some time.

]]> Comment on What Have You Tried by Ann http://www.thecpchild.com/what-have-you-tried#comment-5 Ann Wed, 26 Mar 2008 22:18:16 +0000 http://www.thecpchild.com/what-have-you-tried#comment-5 I saw that episode as well. There is no proof at this time about stem cells and cp, but it certainly is interesting. I'll be anxious to hear more about it. I saw that episode as well. There is no proof at this time about stem cells and cp, but it certainly is interesting. I’ll be anxious to hear more about it.

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